An ovulation test and a bottle of wine---
And I wish you could have seen the face of the guy at the register when I went to check out.
Welcome to my world, buddy.
Having more kids is something TJ and I have been talking about for some time. It's something that a lot of married couples think about. It's an exciting thing to think about. But for me and Teej, it's an exciting thought that also comes with risk. Risk we've thought about, researched, and decided to take.
If you were to ask a doctor, including my doctor, if they would recommend that I to have more kids, their answer would be no. That's because in order for me to have a child, I have to stop taking the medicine that keeps me alive. A medicine that if I did not take, my life expectancy would be 3-5 years. This medication works by killing the 'bad blood cells' and it works great but the downfall is, it causes birth defects. Therefore, there is no way I could keep taking it while trying to conceive. So that means I have to stop taking it. The risk-- that my leukemia will progress.
My doctors recommendation is 'no'. But knowing that I really want kids (as do many younger women with CML), his next recommendation was to wait until my leukemia was basically 'more under control than what it is'. In simple terms-- the goal of treatment is for 0% of your blood cells to be leukemic. This means that the treatment is killing all of the 'bad cells'. I was once at 0% but have been over 0% but less than 1% for several months. Seems minor, but in the grand scheme of things, it means that something still isn't quite right. But the thing is, most people never reach 0%. I may never reach 0% again. And if I keep waiting until that day, that day may never come. So I decided I'm not waiting.
That wasn't a decision that was made lightly. I've done research, lots and lots of research. I am part of a women's CML support group and even asked for their experiences, the ones who have had children. All of them have great stories. I'm not naive in knowing that there are some who haven't had that happy ending, those who aren't alive to share their story. Unfortunately that's a sad reality. But that's a chance I'm okay to take. And here's why--
I've been off my meds for two months. I recently had a blood test and my numbers haven't increased much. That's a good sign. If during this process they do begin to increase to a concerning level, once I'm far enough along, there is a form of treatment I can take that would be safe to the baby, it would just make me really sick. That's a fair trade off. Heck, I was sick almost my entire pregnancy with Talon, not like it would be anything new. Now I get tested every 3 months, once I'm pregnant I'll be tested more often to monitor the progression. But that's the good thing about this type of leukemia. It's chronic, which means it's 'slow growing' therefore, nothing crazy SHOULD happen over night. If something does happen, I feel like I will have time and options. At least that's what I'm hoping for.
Actually, I'm hoping for a non-eventful pregnancy. Some women with CML have had those. Their CML didn't progress at all. Now while I'd like that to happen, I'm not holding my breath. I'm preparing for it to progress a little, but hopeful not to a point where it's a concern.
Actually actually, I'm just hoping for a pregnancy. The longer I'm off my meds, the more at risk I put myself. When deciding to try, TJ and I decided that we'd only try for a certain amount of time. If it doesn't happen soon, then I'll go back on my medications then try again at a later date. In all honestly, I'm not real comfortable being off my medication for more than a year. That gives us 3 months to make that happen. That's a lot of pressure. And because of that, I've tried to just let it be. If it's supposed to happen it will, if not, then I can't be upset because God has already blessed me with the most amazing 8 year old. He is enough. Anything else will just be a bonus.
Whether it happens or not, I plan on documenting the process. Not for the sake of me, but for the sake of any other woman living with CML who one day want children. I hope my story will be one of those happy stories.
I hope. :)
You can follow my entire CML journey from the beginning here.
1. Just wondering if you ever post on the LLS CML board?
ReplyDelete2. After your cycle wait about 2-3 days at most then "try" every 24 hours for the next 18+ days. :-) This should help ensure you do not miss that time when you have ovaluated.
I don't. I'm honesty not sure how. Do I just go to the website?
ReplyDeleteAnd thanks for the tip! :)
Go to lls.org, scroll down to discussion boards. The CML board is great.
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